May 1 marks the start of the Forget ME Not Charity event in Second Life, created by Adelia Aldenholt-Meli (QueenAdelia), to raise awareness about Myalgic Encephalomyelitis, also known as chronic fatigue syndrome or ME/CFS, which Adelia herself is affected by.
According to Adelia, studies have shown that ME has the lowest quality of life scores when compared with other serious diseases, such as cancer, MS, stroke, and more. “We need a lot more awareness about this condition because not only do patients suffer a great deal from their symptoms, but we also have to constantly fight to even be believed,” she said.
Adelia points out that a lot of stigma surrounds the disease, likening it to the days when people didn’t know what MS or Fibromyalgia was, so they psychologized it and called it hysteria. “The same thing is now happening with ME. It’s really important to end these misconceptions as they are hindering patients from getting help, and it’s also hindering essential research into physical dysfunction.”
Adelia would like to see more awareness about ME as a whole but says that unfortunately, it is usually ME patients themselves who have to raise awareness. “It’s very hard to do that with such limiting symptoms,” she said. “That’s why I’m very grateful to you for wanting to share this. Thankfully, Second Life allows me to do a little bit more than I’d be able to in real life. I could never go out on the streets to raise awareness; I’m far too sick and disabled for that. So I’m trying it this way instead.”
Forget ME Not Event Information
You may donate here in our Facebook fundraiser: https://www.facebook.com/forgetMEnotSL/posts/pfbid02dwjZnWVBCT9pVkpZ7GA6CHucB4fTGYsu56d5usKvbzxKycxjSBUGzofDs4XkYFQ9l
You will also be able to donate Lindens during our events in Second Life.
During our musical events, we will also be having raffles & giveaways thanks to Lelutka, Ebody Reborn and many more of our amazing sponsors
Our event schedule is as follows (all times in SLT):
MAY 1 – 1 PM – GRAND OPENING
We open the doors to our venue and Patient Exhibit. The people in our exhibit are real patients who have agreed to participate to create awareness. Come take a look around and see what they have to say about what living with M.E is like. Pick up the info and Blue ribbon when you arrive, to learn more. (No other events at this time)
12 PM – TAY
1 PM – MIMI CARPENTER
2 PM – DJ LICHI MOONWALL
11 AM – FLY KUGIN
12 PM – DJ NEFASTIA
1 PM – GARDO SKY
2 PM – SARITA TWISTED
3 PM – DJ FRANK ATISSO
11 AM – MAVENN
12 PM – FROGG MARLOWE
1 PM – INKAKU CAPALINI
4 PM – DJ VELVET
5 PM – ANGELIKUS DEO
We hope you are able to join us for music, raffles & giveaways to raise awareness about this serious disease, during the International M.E Awareness Month!
Adelia Aldenholt-Meli, Founder of forget ME not
Full sponsor list:
EBODY REBORN/LELUTKA/KIM’S KREATIONS/BE BOLD/OMY/BLUEMOON WEDDINGS/WARETA/WOW-SL/LULUB/ENEWA/::AU:: BOUTIQUE/DRAGONFRUIT/JACKSON REDSTAR VIDEOGRAPHY/THE BEARDED GUY
Facebook fundraiser: https://www.facebook.com/forgetMEnotSL/posts/pfbid02dwjZnWVBCT9pVkpZ7GA6CHucB4fTGYsu56d5usKvbzxKycxjSBUGzofDs4XkYFQ9l
Official website: https://www.forgetmenotsl.com/
Open Medicine Foundation: https://www.omf.ngo/
OMF Authorization Letter: https://drive.google.com/…/1f391ZRUu_6aK…/view
SL username: queenadelia